Global Hydranencephaly Foundation Logo Banner


Picture of several of our bees with the word Believe

SITE MAP


"Aerodynamically, the bumblebee should not be able to fly.
But, the bumblebee does not know that so it goes on flying anyway."
~Mary Kay Ash

Ad for Bravelets fundraiser for GHF

logo for Reddit.com

We are doing an offical Reddit AMA under the username "GlblHYDRANfdtn"
Join in the discussion HERE!
See you there!

Meet one of our Bees!

Meet Charlie!

Visit http://hydranencephalyfoundation.us7.list-manage.com/subscribe?u=71012d06a8129700ab6d8d057&id=70150daae3 to subscribe to our newsletter

Our Mission:
Mission (adopted 8/21/13): The Global Hydranencephaly Foundation is a family driven nonprofit organization dedicated to providing families faced with a diagnosis of hydranencephaly, the opportunity to help their child live the quality of life he or she deserves. The family-to-family resource network is the foundation of this mission; an ideally structured, multi-faceted community for the dissemination of invaluable information, sharing of effective care management strategies specific to the unique circumstances a family faced with diagnosis of this rare neurological condition may encounter, and individualized, life-long support. Emphasis is placed on the development of empowered parent advocates, strengthened by availability of comprehensive information, geographically tailored resources, and a confident awareness of the rights children have to quality, compassionate care without discrimination. We embrace the opportunity for continuous growth through the expansion of additional collaborative partnerships with like-minded organizations and reputable community businesses. Through community-based awareness campaigns and the planned infiltration of the medical community, we aim to conquer the misconceptions that exist surrounding this diagnosis and portray a clearer picture of the possibilities that exist for these children; giving multiple reasons to “Believe in the Impossible!”

Our Vision:
Though a budding foundation, the efforts have the potential to change the lives of thousands of families across the globe; many already involved with the cause. Grants will be awarded for assistance with therapeutic services, equipment, medical costs, and other financial responsibilities of caring for these children. Information for adoption and designated care to insure families are not overwhelmed by the amount of involvement required in caring for these children will also be shared. Awareness campaigns and merchandise to create recognition of the cause and what this condition is will be made available. The foundation will be guided by individual family needs as it grows. The ultimate goal is not to cure, simply to insure these little lives are allowed to shine.

NEW FAMILIES START HERE

All Things Hydranencephaly Guide
for Parents/Caregivers

Please feel free to print our original guide
for your personal use

Available in PDF

Visit Global Hydranencephaly Foundation's profile on Pinterest.

Charity Event Fundraising on Crowdrise

A FUN WAY TO CREATE A FUNDRAISER FOR GHF!
CLICK ON THE LOGO TO LEARN MORE


GO TO TOP



drupal statistics
uggs black friday north face black friday sale michael kors black Friday uggs cyber monday canada goose cyber monday uggs black friday michael kors cyber Monday canada goose black friday Longchamp black friday coach cyber monday uggs cyber monday beats by dre cyber Monday black Friday beats by dre coach cyber monday black Friday beats by dre michael kors black Friday Babyliss cyber Monday michael kors black Friday canada goose cyber monday beats by dre cyber Monday the north face black friday coach cyber monday north face black friday michael kors black Friday north face black friday north face black friday sale uggs black friday beats by dre cyber Monday michael kors cyber Monday beats by dre black Friday sale the north face cyber monday kate spade cyber monday uggs cyber monday uggs black friday Miumiu black Friday moncler cyber monday uggs cyber monday kate spade black friday uggs cyber monday michael kors cyber Monday canada goose cyber monday juicy couture cyber monday canada goose cyber monday Abercrombie and fitch black friday juicy couture cyber monday Tiffany black friday bose black friday Babyliss cyber monday victoria's secret black friday bose black friday michael kors black friday michael kors Black Friday michael kors black friday north face cyber monday uggs Black Friday michael kors black friday