Diapering a hydran infant is initially the same as diapering any other infant. Often, though they have stiff tone and as they get older it can get more difficult to change diapers. If changing your child's diapers becomes difficult due to tone, be sure to mention this to your doctors and therapists. Massage, excercise and medications can help.
Generally even into childhood and adulthood, people with hydran remain in diapers. Some have been partially toilet trained, or urinal trained, but still wear diapers at least at night.
The costs of diapers can be very high, especially as the child and the diapers get bigger. Many insurances, including medicaid will pay for diapers with a prescription for the doctor. There is usually an age limit before they will pay. Most it is age 3 or age 5 before they will start paying for the diapers. Some will also pay for diaper wipes. After infant diaper sizes are maxed out the next step is either toddler pullups or youth sized diapers. Afther youth sized diapers come adult sized.
Many families suggest using a diaper wipe warmer, as our kids tend to be neurologically sensitive and cold baby wipes can send some kids into startles.
Important things to remember when changing diapers is to try and have a place where you don't have to do any major bending whenever possible. When out in public, most kiddos will fit on regular baby changing tables for several years. Many families frequent places that have family restrooms. Some strollers lay flat enough to change diapers on. Some families are able to change kids in their vans or cars. Many families of older children have had to change a child on a bathroom floor more than once. It is good to keep a blanket handy at all times for such occassions.
Constipation is a very common problem with hydran kiddos. Some families do well with extra fiber in the diet, others find medications to be necessary. Many of our kids take various laxatives and stool softeners. One in particular, Miralax, is well known for blowouts. Most families find it helpful to keep plastic bags of some sort like grocery bags handy for throwing diapers away in to minimize smell. We keep them in our diaper bag as well as use them at home. Glycerin suppositories also work well for over the counter constipation help. Check with your doctor for what is best for your child's constipation.
NOTE:THIS CHILD IS DOES NOT HAVE HYDRAN
Massage can be helpful for constipation. Check with your doctor or Early Intervention team. They can help you find an instructor for baby massage. Often they can train you for free. One specific massage that can help with constipation and digestion is the "I Love You" baby massage.
Some of our children develop frequent urinary tract infections. There are many causes for this check with your child's doctors for treatments for your child. Many families use cranberry supplements, preventative antibiotics and other medications to help. Some children also develop problems such as not being able to urinate or fully empty their bladder. Check with your child's doctor if you suspect your child his having trouble. Often it starts with the child not emptying their bladder for several hours.
For any sort of potty training, check with your doctor about whether your child and their bladder are ready and able to take on the task. There are special potty chairs available. My own son is partially urinal trained. Most days he is 80-90% good with using it all day so long as it is offered every couple of hours. We didn't intend on potty training him but he needed to have light bladder massage to initiate urinating and to empty completely and using that every couple of hours. He ended up taking to it very well and often goes completely on his own when the urinal is offered.